Hear Their Stories: Copelin’s Microtia and Atresia Journey
At Hearts for Hearing, every story is unique, just like each journey through hearing loss. For many parents, the path can be daunting, especially after a diagnosis. This was the reality for Copelin’s family when their son was born with unilateral Microtia and Atresia.
Hearts for Hearing Unveils State-of-the-Art Mobile Care Clinic
You will soon see Hearts for Hearing’s state-of-the-art mobile hearing care clinic on the highways and byways across Oklahoma in the coming days, weeks and years.
Hear Their Stories: Isla’s Hearing Loss Journey
19-month-old Isla is bubbly little girl who loves exploring, playing, reading, and dancing along to Elmo. Hear her story and hearing loss journey.
Michael’s Story
Michael was diagnosed with bilateral, profound hearing loss in February of 1998 at 18 months of age. At the time, his family was living in New Mexico however his father had just accepted a faculty position at OU College of Dentistry in Oklahoma City. His mom immediately began researching hearing care services in Oklahoma City, and her search led her to Speech-Language Pathologist, Joanna Smith (our founder), who was with an organization that in 2003 became Hearts for Hearing.
Tyler’s Story
“Being deaf never really held me back on the court, except during the hottest times of the year,” says Tyler, who recalls, “I did sweat through many Nucleus-5 processors before I started using a waterproof sleeve, which helped.” According to Tyler, the Nucleus-7 handles a lot more sweat than older models, and he’s learned to dry-off his hair more often when playing, and he wears a cap. “He adds, I also keep my hair cut short on the sides and I use toupee tape to help keep processors in place.”
Carter’s Story
When Carter was born in early summer 2022, Mom and Dad say they were “blind-sided” when he was born with bilateral microtia. This is a condition defined as underdevelopment of the ear, which means the ear is either too small or not shaped as it should be, or both. Carter also had a cleft lip on the corner of his mouth. “The pregnancy and delivery had been perfectly normal,” says Mom, “we had no idea he would be born with these conditions until the moment he arrived.”
Hadley and Dennis’ Story
11-year-old Hadley helped inspire her grandfather – and still does every day. At 3 ½ years of age, at a Mother’s Day Out class, Hadley referred for additional follow-up at a routine hearing test. “It is probably sinus pressure and fluid in her ears,” thought Mom and Dad. They felt certain her hearing was fine because they interacted with her and watched her relate with family members as a toddler. Still, Hadley had experienced many ear infections, and the parents wanted to be certain everything looked okay.
Jorge and Sandra’s Story
Jorge, 10, and Sandra, 3, share a special bond that goes well beyond their family of five ties – a sound connection if you will – as both children were identified with hearing loss as babies, both fit with hearing technology by age two, and both participating in speech-language therapy at Hearts for Hearing.
Hearts for Hearing receives $5,000 grant from Oklahoma City Community Foundation
“In many cases, these campers – our patients – are the only children in their school classroom or friend group with a cochlear implant or some other type of hearing technology,” says Hearts for Hearing President & CEO Joanna T. Smith, who adds, “At our camp, all children – and many of the volunteer group leaders – rely on technology to hear. It is great to see all these campers interacting, having fun, and making friends with other students who experience the world just like them.” Smith said the iFund grant makes it possible to create such a high-quality camp experience for campers and expressed her gratitude to the Oklahoma City Community Foundation for its continued support.
Rodrigo’s Story
Rodri – as his family calls him – was born prematurely in Venezuela and spent the first weeks of his life in the hospital’s neonatal intensive care unit (NICU) and, according to his mom, survived thanks to oxygen support and antibiotics. She tells us, “We were told Rodri lost his hearing sometime in his first three months of life due to the antibiotics he had to be given to live.”